Maternal Parenting Stress in Families with a Child with Angelman Syndrome or Prader-Willi Syndrome

Autor/inn/en	Wulffaert, Josette; Scholte, Evert M.; Van Berckelaer-Onnes, Ina A.
Titel	Maternal Parenting Stress in Families with a Child with Angelman Syndrome or Prader-Willi Syndrome
Quelle	In: Journal of Intellectual & Developmental Disability, 35 (2010) 3, S.165-174 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2010.499101
Schlagwörter	Mothers; Mental Retardation; Family Programs; Child Rearing; Genetic Disorders; Disabilities; Stress Variables; Family Environment; Correlation; Age Differences; Gender Differences; Behavior Problems; Severe Disabilities; Foreign Countries; Netherlands; Developmental Behavior Checklist; Parenting Stress Index + Suchen Sie Ihr Suchwort? Mother; Mutter; Geistige Behinderung; Family program; Familienprogramm; Kindererziehung; Handicap; Behinderung; Familienmilieu; Korrelation; Age; Difference; Age difference; Altersunterschied; Geschlechterkonflikt; Severe disability; Schwerbehinderung; Ausland; Niederlande
Abstract	Background: Parenting stress was investigated in mothers with a child with Angelman syndrome (AS) or Prader-Willi syndrome (PWS), which are genetically related. Method: Mothers of 24 children with AS and 23 children with PWS (2-12 years) completed the Nijmegen Parenting Stress Index-Short, Developmental Behaviour Checklist, and Vineland Screener 0-12. Results: Parenting stress was high for 58% of AS and 26% of PWS cases. For both syndromes, no relationship existed with the child's gender, age, or behavioural problems. In PWS there was no effect on level of functioning. Overall, more mothers with a child with AS perceived high parenting stress. When children showed low levels of behavioural problems this difference was contained. However, when children exhibited severe behavioural problems, parenting stress was the same for both syndromes. Conclusion: In AS professional family support is essential, since parenting is stressful for many mothers. In PWS, this is especially the case when behavioural problems are present. (Contains 3 tables.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10