Communication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers' Perspectives

Autor/inn/en	Brady, Nancy; Skinner, Debra; Roberts, Joanne; Hennon, Elizabeth
Titel	Communication in Young Children with Fragile X Syndrome: A Qualitative Study of Mothers' Perspectives
Quelle	In: American Journal of Speech-Language Pathology, 15 (2006) 4, S.353-364 (12 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1058-0360
DOI	10.1044/1058-0360(2006/033)
Schlagwörter	Mothers; Interviews; Young Children; Genetic Disorders; Mental Retardation; Augmentative and Alternative Communication; Communication Disorders; Communication Strategies; Expectation; Parent Role + Suchen Sie Ihr Suchwort? Mother; Mutter; Interviewing; Interviewtechnik; Frühe Kindheit; Geistige Behinderung; Kommunikationsstörung; Kommunikationsstrategie; Expectancy; Erwartung; Parental role; Elternrolle
Abstract	Purpose: To provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children. Method: In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children's communication, strategies they used to help promote their children's communication, communication-related frustrations, their expectations for their children, and the roles that they perceive for themselves. Results: Over half the children were nonverbal and learning to communicate with augmentative and alternative communication. Mothers reported using strategies that were developmentally appropriate and recommended by early childhood experts, such as reading and talking to their children. Many mothers identified challenges faced in helping their child to communicate, and some cited difficulty obtaining speech-language services as a challenge. Mothers identified their roles as caregiver, teacher, therapist, and advocate. Conclusions: The perspectives offered by mothers are valuable because they indicate how children with FXS communicate in natural contexts. Information about mothers' expectations and roles may help clinicians to be sensitive to variables that will affect working with young children and their families. (As Provided).
Anmerkungen	American Speech-Language-Hearing Association (ASHA). 10801 Rockville Pike, Rockville, MD 20852. Tel: 800-638-8255; Fax: 301-571-0457; e-mail: subscribe@asha.org; Web site: http://ajslp.asha.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10