Narrating Disability, Narrating Religious Practice: Reconciliation and Fragile X Syndrome

Autor/inn/en	Michie, Marsha; Skinner, Debra
Titel	Narrating Disability, Narrating Religious Practice: Reconciliation and Fragile X Syndrome
Quelle	In: Intellectual and Developmental Disabilities, 48 (2010) 2, S.99-111 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1934-9556
Schlagwörter	Mothers; Religion; Disabilities; Genetic Disorders; Congenital Impairments; Children; Interviews; Personal Narratives; Religious Factors; Story Telling; Attitude Change; Spiritual Development + Suchen Sie Ihr Suchwort? Mother; Mutter; Handicap; Behinderung; Child; Kind; Kinder; Interviewing; Interviewtechnik; Erlebniserzählung; Attitudinal change; Einstellungsänderung
Abstract	This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In semistructured interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of "wounded storytellers," the authors articulate a "reconciliation narrative" that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research. (As Provided).
Anmerkungen	American Association on Intellectual and Developmental Disabilities. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aamr.allenpress.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10