"What's the Next Stage?" Mothers of Young Adults with Down Syndrome Explore the Path to Independence: A Qualitative Investigation

Autor/inn/en	Docherty, Julie; Reid, Kate
Titel	"What's the Next Stage?" Mothers of Young Adults with Down Syndrome Explore the Path to Independence: A Qualitative Investigation
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 22 (2009) 5, S.458-467 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/j.1468-3148.2009.00492.x
Schlagwörter	Mothers; Down Syndrome; Young Adults; Equal Opportunities (Jobs); Independent Living; Parent Role; Transitional Programs; Interviews; Phenomenology; Daily Living Skills; Normalization (Disabilities) + Suchen Sie Ihr Suchwort? Mother; Mutter; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Young adult; Junger Erwachsener; Equal opportunity; Equal opportunities; Job; Jobs; Chancengleichheit; Beruf; Selbstverantwortung; Parental role; Elternrolle; Interviewing; Interviewtechnik; Phenomenological psychology; Phänomenologie; Psychologie; Alltagsfertigkeit; Normalisierung
Abstract	Background: An increased life expectancy for young adults with Down syndrome has coincided with legislative changes to improve access to housing and employment. This study explores the values and beliefs of mothers of young adults with Down syndrome currently involved in supporting their offspring in the possible transition from dependence to independence. Methods: Eight mothers of young adults with Down syndrome were interviewed and the results were thematically analysed using the qualitative approach, Interpretative Phenomenological Analysis (IPA). Result: The mothers described themselves as having a dynamic role as both gate-keepers and facilitators in aiding their offspring on the path to adulthood. Conclusions: These findings are not consistent with findings of previous research, which suggested that mothers in this situation are personally and socially inclined to limit the transition of their offspring to an independent adulthood. The discussion explores the possible reasons for this change and proposes clarification to existing theoretical frameworks for understanding mothers' perspectives. Limitations of the research and future recommendations are discussed. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10