Families of Children with Down Syndrome: What We Know and What We Need to Know

Autor/inn/en	Cuskelly, Monica; Hauser-Cram, Penny; Van Riper, Marcia
Titel	Families of Children with Down Syndrome: What We Know and What We Need to Know
Quelle	In: Down Syndrome Research and Practice, 12 (2009) 3, (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0968-7912
Schlagwörter	Down Syndrome; Longitudinal Studies; Child Rearing; Fathers; Parent Child Relationship; Cross Cultural Studies; Cultural Influences; Age Differences; Family Environment; Research Needs; Research Methodology; Statistical Analysis; Hypothesis Testing; Predictor Variables; Stress Variables; Mothers; Gender Differences; Life Satisfaction; Self Efficacy; Marital Satisfaction; Siblings; Social Values; Early Intervention; Family Work Relationship; Employed Parents + Suchen Sie Ihr Suchwort? 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Longitudinal study; Longitudinal method; Longitudinal methods; Längsschnittuntersuchung; Kindererziehung; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Cultural comparison; Kulturvergleich; Cultural influence; Kultureinfluss; Age; Difference; Age difference; Altersunterschied; Familienmilieu; Forschungsbedarf; Research method; Forschungsmethode; Statistische Analyse; Hypothesenprüfung; Hypothesentest; Prädiktor; Mother; Mutter; Geschlechterkonflikt; Lebensvollendung; Self-efficacy; Selbstwirksamkeit; Sibling; Geschwister; Sozialer Wert
Abstract	This paper provides a brief overview of what is currently known about families of children with Down syndrome. In addition, it highlights a number of issues that require further research if we are to have a thorough understanding of the impact of a child with Down syndrome on families as a system and on the individuals who make up that system. Some of these issues include the need for: 1) a more balanced perspective--one that acknowledges both positive and negative aspects of the experience, 2) greater attention to the experiences of fathers, 3) more cross-cultural research and studies focused on cultural perspectives, 4) increased attention to the change in demands for families as the individual with Down syndrome ages, 5) more longitudinal studies, 6) greater variety in methodological approaches, for example greater use of qualitative approaches and observational methods, and 7) an increase in the use of statistical approaches that model change and test hypotheses about predictors of change in both parents and children. (As Provided).
Anmerkungen	Down Syndrome Education International. The Sarah Duffen Centre, Belmont Street, Southsea, Hampshire, PO5 1NA, UK. Tel: +44-023-9285-5330; Fax: +44-023-9285-5320; e-mail: enquiries@downsed.org; Website: http://www.downsed.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10