Motherhood and Genetic Screening: A Personal Perspective

Autor/in	Place, Fiona
Titel	Motherhood and Genetic Screening: A Personal Perspective
Quelle	In: Down Syndrome Research and Practice, 12 (2008) 2, S.118-126 (9 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0968-7912
DOI	10.3104/essays.2013
Schlagwörter	Stellungnahme; Females; Down Syndrome; Pregnancy; Mothers; Genetic Disorders; Screening Tests; Coping; Personal Narratives; Child Rearing; Parent Attitudes; Attitudes toward Disabilities; Social Attitudes + Suchen Sie Ihr Suchwort? Weibliches Geschlecht; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Schwangerschaft; Mother; Mutter; Screening-Verfahren; Bewältigung; Erlebniserzählung; Kindererziehung; Elternverhalten; Social attidude; Soziale Einstellung
Abstract	According to the medical profession the direction and scope of reproductive services such as IVF and pre-natal screening are based on solid evidence; the evidence indicates these are effective and safe services. Moreover, women want them. As a consequence these services are usually presented to the wider community in a positive light with images of "successful" birth outcomes showcasing the importance of their work. Unsurprisingly this has lead to women being expected to take control--from timing a pregnancy to choosing one particular pregnancy over another--they are to improve their lives and the health of their offspring. But are these developments all "good" news? Is it safe to assume the push to achieve better birth outcomes and the concomitant use of prenatal testing automatically improves lives? Could it be the issues raised are causing some lives to become harder? How meaningful, for example, are tests such as amniocentesis and CVS? As the mother of a child with Down syndrome I believe it is important for myself and other women in similar situations to share their lived experience. Perhaps we can illuminate some of the more complex and troubling issues these technological advances have the capacity to create--not only for ourselves--but for all women. (As Provided).
Anmerkungen	Down Syndrome Education International. The Sarah Duffen Centre, Belmont Street, Southsea, Hampshire, PO5 1NA, UK. Tel: +44-023-9285-5330; Fax: +44-023-9285-5320; e-mail: enquiries@downsed.org; Website: http://www.downsed.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10