Mothers Raising Children with Sickle Cell Disease at the Intersection of Race, Gender, and Illness Stigma

Autor/inn/en	Burnes, David P. R.; Antle, Beverley J.; Williams, Charmaine C.; Cook, Lisa
Titel	Mothers Raising Children with Sickle Cell Disease at the Intersection of Race, Gender, and Illness Stigma
Quelle	In: Health & Social Work, 33 (2008) 3, S.211-220 (10 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0360-7283
Schlagwörter	Mothers; Diseases; Coping; Foreign Countries; Social Isolation; Social Work; Interviews; Parent Attitudes; Child Rearing; Child Health; Chronic Illness; Access to Health Care; Public Health; Gender Discrimination; Racial Discrimination; Anxiety; Africa; Canada + Suchen Sie Ihr Suchwort? Mother; Mutter; Disease; Krankheit; Bewältigung; Ausland; Soziale Isolation; Soziale Arbeit; Interviewing; Interviewtechnik; Elternverhalten; Kindererziehung; Chronic disease; Chronische Krankheit; Gesundheitswesen; Racial bias; Rassismus; Angst; Afrika; Kanada
Abstract	This qualitative study used the long interview method with Canadian mothers of African and Caribbean descent to understand the underresearched experience of raising a child with sickle cell disease (SCD). Mothers' realities were explored through three levels of social organization: daily caregiver coping (micro level); community views of SCD, such as stigma (meso level); and systemic SCD health care provision (macro level). Through the use of population health and structural social work perspectives, mothers' experiences were examined in the context of perceived gender and racial oppression. Saturation was achieved after initial interviews with 10 participants and a four-month postinterview with half of the participants. Mothers commonly reported several daily coping challenges: fear of their children's death, separation anxiety, loss of control over life, helplessness, and loneliness/isolation. SCD stigma interacted with racism, contributed to social isolation, and prevented families from organizing as a group. All mothers perceived racism as a salient factor behind inadequate mainstream SCD health care. Recommendations to improve SCD health care and implications for social work practice and research are discussed. This is the first known Canadian psychosocial study of SCD and investigation into SCD stigma outside of rural Nigeria. (As Provided).
Anmerkungen	National Association of Social Workers (NASW). 750 First Street NE Suite 700, Washington, DC 20002. Tel: 800-227-3590; e-mail: press@naswdc.org; Web site: http://www.naswpress.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10