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Autor/inn/enConnor, Zoe Lindsay; Hennessy-Priest, Kathleen; Kneafsey, Rosie; Lycett, Deborah
TitelLet down by Low Expectations: A Qualitative Interview/Participatory Photography Study of Feeding Problems in Autistic Children
QuelleIn: Journal of Occupational Therapy, Schools & Early Intervention, 16 (2023) 3, S.262-280 (19 Seiten)Infoseite zur Zeitschrift
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ZusatzinformationORCID (Connor, Zoe Lindsay)
ORCID (Kneafsey, Rosie)
ORCID (Lycett, Deborah)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1941-1243
DOI10.1080/19411243.2022.2054485
SchlagwörterEating Disorders; Autism Spectrum Disorders; Food; Parent Attitudes; Photography; Family Environment; Parent Role; Family Needs; Expectation; Professional Personnel; Access to Health Care; Foreign Countries; Children; Early Adolescents; Mothers; United Kingdom (London)
AbstractFeeding problems are common in autistic children. They include eating a limited repertoire of foods and often impact on health and quality of life. To examine the experiences of parents of autistic children who have feeding problems, and their service needs. A pragmatic, qualitative research approach was adopted. Six participants were recruited using purposive and snowball sampling. Data was collected via semi-structured interviews. Participants also submitted photographs with captions. These illustrated their child's feeding problems and the effect on them and their family. Interviews were transcribed. They were analyzed alongside the photos and captions using inductive thematic analysis. Rigor was ensured via member checking, peer review of themes, and reflexive journaling. Five themes emerged. Parents and children found 'mealtimes difficult.' Parents were 'unsure when or whether to pursue help.' They felt 'let down by a lack of support.' 'Lowered expectations of parents and professionals' prevailed about their child's feeding problems. Parents desired 'services that are easily accessible and supportive.' This is the first qualitative study of parents' experiences of feeding problems in autistic children in the UK. It has been the first study to incorporate participatory photography. These problems have a negative impact on the child's learning and the child's, and family's wellbeing. Support needs are largely unmet. This study has provided rich insight into autistic children's feeding problems. The findings will inform the design of better support for autistic children and their families. (As Provided).
AnmerkungenTaylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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