Vulnerable but Stronger Together: An Interpretative Phenomenological Analysis of the Experiences of Mothers of Young Adults with Profound Intellectual and Multiple Disabilities during the COVID-19 Pandemic

Autor/inn/en	den Boer, M. C.; Voermans, M. A. C.; Embregts, P. J. C. M.
Titel	Vulnerable but Stronger Together: An Interpretative Phenomenological Analysis of the Experiences of Mothers of Young Adults with Profound Intellectual and Multiple Disabilities during the COVID-19 Pandemic
Quelle	In: Journal of Intellectual & Developmental Disability, 48 (2023) 2, S.215-223 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (den Boer, M. C.) ORCID (Embregts, P. J. C. M.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2022.2135174
Schlagwörter	Mothers; Young Adults; Severe Intellectual Disability; Multiple Disabilities; COVID-19; Pandemics; Experience; Resilience (Psychology); Risk; Family Environment; Foreign Countries; Parent Attitudes; Coping; Professional Personnel; Role; Netherlands + Suchen Sie Ihr Suchwort? Mother; Mutter; Young adult; Junger Erwachsener; Multiple disability; Mehrfachbehinderung; Erfahrung; Risiko; Familienmilieu; Ausland; Elternverhalten; Bewältigung; Personalbestand; Rollen; Niederlande
Abstract	Background: Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods: A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis. Results: Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness. Conclusions: Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01