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Autor/inn/enDaniels, Benjamin; Boffa, Jody; Kwan, Ada; Moyo, Sizulu
TitelDeception and Informed Consent in Studies with Incognito Simulated Standardized Patients: Empirical Experiences and a Case Study from South Africa
QuelleIn: Research Ethics, 19 (2023) 3, S.341-359 (19 Seiten)Infoseite zur Zeitschrift
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ZusatzinformationORCID (Daniels, Benjamin)
ORCID (Kwan, Ada)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1747-0161
DOI10.1177/17470161231174734
SchlagwörterDeception; Informed Consent; Simulation; Patients; Ethics; Medical Research; Health Services; Data Collection; Foreign Countries; Legal Responsibility; Risk; Case Studies; South Africa
AbstractSimulated standardized patients (SPs) are trained individuals who pose incognito as people seeking treatment in a health care setting. With the method's increasing use and popularity, we propose some standards to adapt the method to contextual considerations of feasibility, and we discuss current issues with the SP method and the experience of consent and ethical research in international SP studies. Since a foundational discussion of the research ethics of the method was published in 2012, a growing number of studies have implemented this method to collect data on the quality of care in a variety of settings around the world. We draw from that experience to provide empirical foundations for a popular approach to ethical approval of such studies in the United States and Canada, which has been to obtain a waiver of informed consent from the health care providers who are the subjects of the research. However, the majority of studies to date have evaluated quality of care outside the U.S., requiring additional ethical consideration when partnering with international institutions. We discuss these considerations in the context of a case study from a completed SP study in South Africa, where informed consent is constitutionally protected. (As Provided).
AnmerkungenSAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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