Family-Centered Practices and Caregiver Mental Health in a Developmental Intervention for Young Children with Congenital Zika Syndrome

Autor/inn/en	Williams, Natalie A.; Villachan-Lyra, Pompéia; Hatton-Bowers, Holly; Marvin, Christine; Chaves, Emmanuelle; Hollist, Cody; Gomes, Renata Trefiglio Mendes; Barbosa, Leopoldo Nelson F.
Titel	Family-Centered Practices and Caregiver Mental Health in a Developmental Intervention for Young Children with Congenital Zika Syndrome
Quelle	In: Infants and Young Children, 36 (2023) 1, S.21-36 (16 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Williams, Natalie A.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0896-3746
DOI	10.1097/IYC.0000000000000230
Schlagwörter	Foreign Countries; Intervention; Children; Caregivers; Stress Variables; Coping; Family Programs; Depression (Psychology); Mental Health; Services; Communicable Diseases; Pregnancy; Congenital Impairments; Brazil + Suchen Sie Ihr Suchwort? Ausland; Child; Kind; Kinder; Caregiver; Carer; Betreuungsperson; Pfleger; Bewältigung; Family program; Familienprogramm; Psychohygiene; Dienstleistung; Contagious disease; Contagious diseases; Communicable disease; Infektionskrankheit; Schwangerschaft; Brasilien
Abstract	The goal of this study was to describe the provision of intervention services to children with congenital Zika syndrome (CZS) in a large health care institution located in Recife, Brazil, and family factors related to intervention involvement, through the lens of family-centered developmental--behavioral pediatric care principles. Caregivers (N = 50) of children with CZS who were receiving services at a public rehabilitation hospital participated a cross-sectional survey study. Among caregivers, 22% reported a low number of both child and caregiver intervention contacts, 26% reported a high number of child contacts but low caregiver contacts, and 52% reported both high child and caregiver contacts with intervention staff in the past 3 months. Caregiver stress scores were higher and coping strategies were lower in the low child and caregiver intervention contact group. Most caregivers reported high levels of family-centered practices. In regression models, low family resources was associated with higher depression and stress and low coping strategy use, whereas higher support was associated with higher coping. This study adds to the small literature exploring intervention services provided to children with CZS with a particular emphasis on family-centered care principles. It is recommended that intervention programs in Brazil evaluate the availability and accessibility of family resources and develop strategies to help connect families to resources that promote caregiver mental health and child outcomes. (As Provided).
Anmerkungen	Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail: MR-WKCustomerSupport@wolterskluwer.com; Web site: https://journals.lww.com/pages/default.aspx
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01