Co-Design of an NHS Primary Care Health Check for Autistic Adults

Autor/inn/en	Taylor, Helen; Ingham, Barry; Mason, David; Finch, Tracy; Wilson, Colin; Scarlett, Clare; Moss, Sebastian; Buckley, Carole; Urbanowicz, Anna; Raymaker, Dora; Seiboth, Charlotte; Lees, Rhianna; Garland, Deborah; Osbourne, Malcolm; Lennox, Nicholas; Cooper, Sally-Ann; Nicolaidis, Christina; Parr, Jeremy R.
Titel	Co-Design of an NHS Primary Care Health Check for Autistic Adults
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 4, S.1079-1091 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Taylor, Helen) ORCID (Mason, David) ORCID (Urbanowicz, Anna) ORCID (Raymaker, Dora) ORCID (Cooper, Sally-Ann) ORCID (Nicolaidis, Christina)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613221132921
Schlagwörter	Foreign Countries; Autism Spectrum Disorders; Access to Health Care; Primary Health Care; Adults; Allied Health Personnel; Diversity; Knowledge Level; Individual Characteristics; Mental Health; Physical Health; Intellectual Disability; Patients; At Risk Persons; Symptoms (Individual Disorders); Needs; Well Being; Interpersonal Relationship; Social Support Groups; United Kingdom + Suchen Sie Ihr Suchwort? Ausland; Autism; Autismus; Gesundheitsvorsorge; Wissensbasis; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Psychohygiene; Gesundheitszustand; Intellect; Disability; Disabilities; Verstand; Behinderung; Patient; Risikogruppe; Psychiatrische Symptomatik; Grundbedürfnis; Well-being; Wellness; Wohlbefinden; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Social support; Soziale Unterstützung; Großbritannien
Abstract	Autistic people experience more health conditions and earlier mortality. This study investigated views about a primary care health check for autistic adults to inform its design. Fifty-one people participated in consultation groups and interviews, comprising autistic adults (some with co-occurring intellectual disabilities), adults with intellectual disabilities, supporters and health professionals. Participants wanted the health check to cover physical and mental health and social functioning. They emphasised the importance of sharing information about individual needs and associated adjustments before the health check. They highlighted the need to change the way healthcare services communicate with autistic people, such as reducing phone contact and booking appointments online. They wanted individual choice in how the health check was completed, with video call or email offered alongside face-to-face. Participants raised the need for further training of primary care staff on autism, to highlight the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently. Clinicians raised questions about the capacity of mental health and social care services to meet the additional needs potentially identified through the health check. This study represents a key step in the development and co-design of a UK primary care health check for autistic people. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01