Parent Experiences of Obtaining an Autism Diagnosis for Their Daughter: An Interpretative Phenomenological Analysis

Autor/inn/en	Freeman, Nerelie C.; Paradis, Pascale
Titel	Parent Experiences of Obtaining an Autism Diagnosis for Their Daughter: An Interpretative Phenomenological Analysis
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 4, S.1068-1078 (11 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Freeman, Nerelie C.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613221129830
Schlagwörter	Parent Role; Autism Spectrum Disorders; Daughters; Clinical Diagnosis; Barriers; Foreign Countries; Parent Student Relationship; Australia + Suchen Sie Ihr Suchwort? Parental role; Elternrolle; Autism; Autismus; Daughter; Tochter; Ausland; Australien
Abstract	The process of getting an autism diagnosis can be a stressful and uncertain time for families. While the experiences of parents seeking an autism diagnosis for their child have been explored in previous research, the experiences of families with a daughter have been underrepresented. It is likely that their experience is markedly different given that females are often misdiagnosed and/or are diagnosed at a later age. Semi-structured interviews were conducted with six families, and interpretative phenomenological analysis was used along with member checks to derive themes from the participants' narratives. Three superordinate themes emerged from the analysis: 'Something's not right' consisted of narratives describing the process of getting their daughter diagnosed and 'So many barriers' captured the factors that delayed assessment and diagnosis. Finally, the third theme 'I wanted to just get this process done and dusted' explored the range of emotions experienced by families during the assessment process. The importance of challenging outdated conceptualisations of autism and providing further training to increase health professionals' confidence when diagnosing autistic females is emphasised, as well as recognising that families may experience a range of emotions during the assessment and diagnostic process, including positive ones. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01