Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic

Autor/inn/en	Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia
Titel	Experiences of Mothers of Children with Profound Intellectual and Multiple Disabilities in the Czech Republic
Quelle	In: British Journal of Learning Disabilities, 51 (2023) 1, S.3-12 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/bld.12443
Schlagwörter	Experience; Mothers; Severe Disabilities; Severe Intellectual Disability; Multiple Disabilities; Foreign Countries; Caring; Children; Parent Attitudes; Psychological Patterns; Czech Republic + Suchen Sie Ihr Suchwort? Erfahrung; Mother; Mutter; Severe disability; Schwerbehinderung; Multiple disability; Mehrfachbehinderung; Ausland; Care; Pflege; Sorge; Betreuung; Child; Kind; Kinder; Elternverhalten; Tschechische Republik
Abstract	Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic data were used for data collection. Data analyses were carried out according to Van Manen's approach, including defining the main themes and description of the lived experiences of mothers. Findings: The dominant themes that emerged from the interviews were (1) losses and limits, (2) increased demands and exhaustion, (3) worries, (4) challenges connected to help and support, (5) transformation, (6) pleasures with contentment of the child and a small development and (7) functional support. Conclusions: The findings demonstrate that mothers of children with profound intellectual and multiple disabilities are at risk of facing many kinds of life difficulties, but the children have also positive impact on the mothers' lives. Relevant professionals and policy makers should be aware of the needs and challenges experienced by this vulnerable population. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01