"Life-Altering": A Qualitative Analysis of Social Media Birth Stories from Mothers of Children with Down Syndrome

Autor/inn/en	Kammes, Rebecca R.; Lachmar, E. Megan; Douglas, Sarah N.; Schultheiss, Hannah
Titel	"Life-Altering": A Qualitative Analysis of Social Media Birth Stories from Mothers of Children with Down Syndrome
Quelle	In: Journal of Intellectual Disabilities, 26 (2022) 4, S.919-937 (19 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Kammes, Rebecca R.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1744-6295
DOI	10.1177/17446295211025960
Schlagwörter	Mothers; Birth; Disclosure; Down Syndrome; Social Media; Story Telling; Neonates; Parent Attitudes; Clinical Diagnosis; Emotional Response; Coping; Health Personnel; Role; Anxiety; Depression (Psychology); Child Health; Stress Variables; Intuition + Suchen Sie Ihr Suchwort? Mother; Mutter; Geburt; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Soziale Medien; Neugeborenes Kind; Elternverhalten; Emotionales Verhalten; Bewältigung; Medizinisches Personal; Rollen; Angst
Abstract	Perinatal depression/anxiety is a significant concern for mothers of children with Down syndrome. This is influenced by the way the Down syndrome diagnosis is shared with parents. This study examined social media posts from mothers regarding experiences of the birth of their child with Down syndrome. Forty-three total stories were coded using thematic content analysis. Results highlighted the experiences of mother's who received a diagnosis of Down syndrome for their newborn. Two themes were found with relevant subthemes (i.e., receiving the diagnosis--mother's intuition, confirmation of the diagnosis, influence of potential health concerns, initial emotions, impact of the medical professional; Processing the diagnosis--life-altering, child not meeting expectations, reframing the diagnosis, impact of partner and others). Findings highlight the need for medical personnel to understand this identity-changing process, as perinatal depression/anxiety looks different for these mothers. There is also a need to help them engage in services accordingly. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01