Literaturnachweis - Detailanzeige
| Autor/in | MacGregor, Laura |
|---|---|
| Titel | Mingled Bodies and Voices: Maternal Reflections on Caregiver Expertise and Intellectual Disability |
| Quelle | In: Journal of Intellectual Disabilities, 26 (2022) 3, S.594-602 (9 Seiten)
PDF als Volltext |
| Zusatzinformation | ORCID (MacGregor, Laura) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 1744-6295 |
| DOI | 10.1177/17446295211009339 |
| Schlagwörter | Mothers; Severe Intellectual Disability; Parent Attitudes; Caregivers; Expertise; Parent Role; COVID-19; Pandemics; Foreign Countries; Human Body; Advocacy; Hospitals; Canada |
| Abstract | The risk of viral infection during the COVID-19 pandemic has caused many hospitals to prohibit all patient visitors, including family caregivers for people with intellectual disabilities. Drawing on a postmodern, intersubjective view of the body, as well as my experience as the mother of a young adult with profound disabilities, I argue that caregiver knowledge while unconventional within the medical paradigm must be viewed as essential expertise. People with profound intellectual disabilities often have concurrent, complex medical issues that are complicated by their inability to self-advocate. Optimal care rests upon the ongoing presence and expertise of their primary caregiver. Medical professionals risk patient care by excluding the essential expertise of family caregivers at any time, and specifically during COVID-19. (As Provided). |
| Anmerkungen | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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