Social Participation: The Perspectives of Adolescents with Cerebral Palsy and Their Mothers

Autor/inn/en	Lopes, Priscila Bianchi; Shikako-Thomas, Keiko; Cardoso, Roberta; Simões Matsukura, Thelma
Titel	Social Participation: The Perspectives of Adolescents with Cerebral Palsy and Their Mothers
Quelle	In: International Journal of Developmental Disabilities, 67 (2021) 4, S.263-272 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Shikako-Thomas, Keiko)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	2047-3869
DOI	10.1080/20473869.2019.1623596
Schlagwörter	Cerebral Palsy; Adolescents; Mothers; Attitudes; Participation; Social Life; Parent Attitudes; Foreign Countries; Personal Autonomy; Interpersonal Relationship; Parenting Styles; Barriers; Brazil + Suchen Sie Ihr Suchwort? Hirnlähmung; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Mother; Mutter; Attitude; Einstellung; Verhalten; Teilnahme; Soziales Leben; Elternverhalten; Ausland; Individuelle Autonomie; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Brasilien
Abstract	Background: Social participation is a complex construct, thus different factors may facilitate or restrict engagement. Adolescents with Cerebral Palsy (CP) and their mothers often experience barriers in social participation. Therefore, they are frequently facing challenges in order to engage in meaningful activities, in different contexts. Objective: We aimed at exploring the perspectives of mothers and adolescents with CP on their social participation. Method: This is a cross-sectional and exploratory study, with a qualitative design. Seven adolescents with CP, aged from 11 to 17 years old and their mothers, participated in a semi-structured interview, in São Paulo, Brazil. Data from interviews were analyzed with the Collective Subject Discourse (CSD) technique. Results: Mothers believed that their parenting practices contribute to the social participation of their children. Mothers revealed concerns about how to support the autonomy of their children and how to help them to establish meaningful and mature relationships. Adolescents with CP reported to engage in a range of social activities, with friends in different contexts, such as restaurants, cinema, concerts, parks and school. They also reported to appreciate social participation and to look for strategies in order to engage. Conclusions: This work can contribute to the understanding of social participation of adolescents with CP, under the perspective of these people and their mothers by allowing them to express their thoughts and voice their fears and limitations. Healthcare providers should adopt a lifespan approach to disabilities and recognize the unique challenges of adolescence in the life of both child and parents. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01