Stressed Parents, Happy Parents. An Assessment of Parenting Stress and Family Quality of Life in Families with a Child with Phelan-McDermid Syndrome

Autor/inn/en	Droogmans, Gilles; Vergaelen, Elfi; Van Buggenhout, Griet; Swillen, Ann
Titel	Stressed Parents, Happy Parents. An Assessment of Parenting Stress and Family Quality of Life in Families with a Child with Phelan-McDermid Syndrome
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 4, S.1076-1088 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Droogmans, Gilles) ORCID (Vergaelen, Elfi) ORCID (Van Buggenhout, Griet) ORCID (Swillen, Ann)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12858
Schlagwörter	Genetic Disorders; Child Rearing; Stress Variables; Family Environment; Quality of Life; Parent Attitudes; Adjustment (to Environment); Well Being; Parent Role; Mothers; Fathers + Suchen Sie Ihr Suchwort? Kindererziehung; Familienmilieu; Lebensqualität; Elternverhalten; Well-being; Wellness; Wohlbefinden; Parental role; Elternrolle; Mother; Mutter
Abstract	Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and fathers (n = 13) of individuals with PMS (n = 14; 6 females, 8 males; age 2-37, M = 20, SD = 11.92) completed questionnaires on parenting stress, FQOL, adaptive behaviour and background characteristics. Results: Mothers and fathers experienced high, similar and related levels of parenting stress and FQOL satisfaction. Parenting stress and FQOL satisfaction were inversely related. High and low ratings were retrieved for subscales measuring feelings of parental role restriction and emotional well-being, respectively. The adaptive skills of the individuals with PMS were related to fathers' parenting stress and FQOL satisfaction. Conclusions: Clinical practice is encouraged to be attentive to family dynamics and grasp opportunities to interact with these dynamics. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01