How Is Autistic Identity in Adolescence Influenced by Parental Disclosure Decisions and Perceptions of Autism?

Autor/inn/en	Riccio, Ariana; Kapp, Steven K.; Jordan, Allison; Dorelien, Anna Marie; Gillespie-Lynch, Kristen
Titel	How Is Autistic Identity in Adolescence Influenced by Parental Disclosure Decisions and Perceptions of Autism?
Quelle	In: Autism: The International Journal of Research and Practice, 25 (2021) 2, S.374-388 (15 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Riccio, Ariana) ORCID (Gillespie-Lynch, Kristen)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320958214
Schlagwörter	Autism; Pervasive Developmental Disorders; Self Concept; Parent Attitudes; Parent Child Relationship; Attitudes toward Disabilities; Clinical Diagnosis; Disclosure; Definitions; Decision Making; Adolescents; Adolescent Development; Mothers; Educational Attainment; Metacognition; Summer Programs; Urban Areas + Suchen Sie Ihr Suchwort? Autismus; Selbstkonzept; Elternverhalten; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Begriffsbestimmung; Decision-making; Entscheidungsfindung; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Mother; Mutter; Bildungsabschluss; Bildungsgut; Meta cognitive ability; Meta-cognition; Metakognitive Fähigkeit; Metakognition; Sommerkurs; Urban area; Stadtregion
Abstract	A large body of literature examines parental interpretations of their child's autism diagnosis. However, research examining intersections between parental disclosure of their child's autism diagnosis to their child and their child's identity development is lacking. The primary aim of this study was to analyze if parental decisions to disclose/withhold their child's autism diagnosis influence adolescents' perceptions of autism and identity development. Adolescent participants (n = 19) and their mothers, recruited from an informal educational program, completed in-person interviews and online questionnaires, respectively. Adolescents were told about their autism diagnosis in varying ways. Adolescents whose parents voluntarily disclosed their autism diagnosis to them described autism and themselves more positively than adolescents who did not experience voluntary disclosure. Although parents and teens showed similarities on a group level when defining autism, parents and children expressed diverse themes in their definitions of autism. Findings suggest that parents can help their children develop neurodiversity-aligned perspectives about autism by mindfully discussing autism with them early in their development. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01