Parenting Girls with Rett Syndrome: An Investigation on Self-Perceived Levels of Stress

Autor/inn/en	Pari, Elisa; Cozzi, Francesca; Rodocanachi Roidi, Marina Luisa; Grange, Francesca; Toshimori, Kumiko; Ripamonti, Enrico
Titel	Parenting Girls with Rett Syndrome: An Investigation on Self-Perceived Levels of Stress
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 33 (2020) 6, S.1348-1356 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Ripamonti, Enrico)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12755
Schlagwörter	Child Rearing; Caregiver Role; Parent Caregiver Relationship; Females; Mothers; Fathers; Self Concept; Stress Variables; Genetic Disorders; Neurological Impairments; Severity (of Disability); Parenting Stress Index + Suchen Sie Ihr Suchwort? Kindererziehung; Weibliches Geschlecht; Mother; Mutter; Selbstkonzept; Neurodegenerative Erkrankung; Schweregrad
Abstract	Background: Although lives of parents of girls with Rett syndrome (RTT) are centred on the process of care, in the current literature their perceived levels of stress have been rarely investigated. Methods: We analysed levels of stress in a sample of 79 fathers and mothers parenting girls with RTT, who were required to compile the Parenting Stress Index (PSI) questionnaire. Results: We found clinical levels of stress in about 39% of fathers, as compared with 44% of the mothers. Severity of RTT, but not other factors such as the genetic domain, presence of epilepsy or scoliosis, predicted Total Stress scores in both fathers' subsample and mothers' subsample. A cumulative effect of caring, that is association of higher levels of stress with longer process of care, did also emerge from estimation of smoothing splines. Conclusions: Fathers' resources should be taken more into account, especially in the rehabilitation and socialization process of adults with RTT. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01