Support Needs of Parents with Intellectual Disabilities: Systematic Review on the Perceptions of Parents and Professionals

Autor/inn/en	Koolen, Joyce; van Oorsouw, Wietske; Verharen, Lisbeth; Embregts, Petri
Titel	Support Needs of Parents with Intellectual Disabilities: Systematic Review on the Perceptions of Parents and Professionals
Quelle	In: Journal of Intellectual Disabilities, 24 (2020) 4, S.559-583 (25 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1744-6295
DOI	10.1177/1744629519829965
Schlagwörter	Parent Attitudes; Parents; Intellectual Disability; Qualitative Research; Community Services; Professional Personnel; Caseworkers; Social Support Groups; Social Networks; Mothers; Foreign Countries; Child Rearing; United Kingdom; Australia; Sweden; Iceland; Germany; New Zealand + Suchen Sie Ihr Suchwort? Elternverhalten; Eltern; Intellect; Disability; Disabilities; Verstand; Behinderung; Qualitative Forschung; Gemeindenahe Versorgung; Personalbestand; Social support; Soziale Unterstützung; Social network; Soziales Netzwerk; Mother; Mutter; Ausland; Kindererziehung; Großbritannien; Australien; Schweden; Island; Deutschland; Neuseeland
Abstract	This review aimed to examine the perceptions of parents, professionals and informal network members regarding support needs of parents with intellectual disabilities (ID). In accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement, five databases were systematically searched and 19 qualitative studies were reviewed using thematic analyses. No data were available on the perceptions of the informal social network. Data on parents and professionals were categorized in four themes (type of support, sources of support, conditions of successful support and characteristics of support members). Data from professionals did not refer to emotional support needs or to the potential support of volunteers, friends and neighbours. Data from parents indicated a preference to be treated as 'full' parents, whereas professionals tended to focus on disabilities of parents. Results and implications contribute to insights into support needs of parents with ID from different perspectives and may help identify new entry points to improve future interventions and working alliances. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01