Do Caregiver Proxy Reports and Congruence of Client-Proxy Activity Participation Goals Relate to Quality of Life in People with Aphasia?

Autor/inn/en	Nicholas, Marjorie; Jennelle, Lindsay; Connor, Lisa Tabor; Haynes, Charles; Zipse, Lauryn
Titel	Do Caregiver Proxy Reports and Congruence of Client-Proxy Activity Participation Goals Relate to Quality of Life in People with Aphasia?
Quelle	In: International Journal of Language & Communication Disorders, 55 (2020) 3, S.373-386 (14 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Nicholas, Marjorie)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1368-2822
DOI	10.1111/1460-6984.12524
Schlagwörter	Quality of Life; Aphasia; Caregivers; Participation; Objectives; Activities; Congruence (Psychology) + Suchen Sie Ihr Suchwort? Lebensqualität; Expressive Aphasie; Aphasie; Caregiver; Carer; Betreuungsperson; Pfleger; Teilnahme; Goal definition; Zielsetzung; Congruence; Psychology; Kongruenz; Psychologie
Abstract	Background: Achieving activity participation goals is a key factor in quality of life (QOL) for people with aphasia (PWA), but expressing participation goals can be difficult for many of them. Proxy reports by caregivers may not accurately reflect the interests and participation goals of PWA, and discrepancies in these goals between PWA and their caregivers may affect QOL, based on the assumption that caregivers' awareness of their loved ones' unique participation goals may be important to increasing PWA activity participation. Aims: To examine everyday activities valued by PWA using the Life Interests and Values (LIV) Cards; to measure congruence between PWA and their caregivers on life participation goals; and to measure how congruence of PWA-caregiver participation goals related to QOL. Methods & Procedures: A convenience sample of 25 PWA completed the LIV Card assessment and the Stroke Aphasia Quality of Life Scale--39 to assess participation goals and QOL. Participation goals were also evaluated with respect to age, time post-onset and aphasia severity. A total of 12 caregivers were administered the LIV Cards to calculate agreement between PWA-proxy activity reports and the relationship between agreement and QOL. Outcomes & Results: PWA endorsed wanting to participate more in a wide range of activities, with common interests in walking/running, going to the beach and eating out, among others. PWA-caregiver activity agreement was fair to moderate with point-to-point agreement averaging 70%. However, no relationship between degree of congruence in PWA-proxy pairs and QOL was found. Conclusions & Implications: PWA have a variety of activity participation goals that can be integrated into intervention plans. Dependence on proxy respondents should be reduced as much as possible to support self-determination for PWA. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01