The Experience of Mothers Supporting Self-Determination of Adult Sons and Daughters with Intellectual Disability

Autor/inn/en	Curryer, Bernadette; Stancliffe, Roger J.; Wiese, Michele Y.; Dew, Angela
Titel	The Experience of Mothers Supporting Self-Determination of Adult Sons and Daughters with Intellectual Disability
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 33 (2020) 3, S.373-385 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Curryer, Bernadette) ORCID (Stancliffe, Roger J.) ORCID (Wiese, Michele Y.) ORCID (Dew, Angela)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12680
Schlagwörter	Intellectual Disability; Sons; Daughters; Parent Child Relationship; Adults; Mothers; Self Determination; Civil Rights; Parent Role; Social Support Groups + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Son; Sohn; Daughter; Tochter; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Mother; Mutter; Selbstbestimmung; Bürgerrechte; Grundrechte; Zivilrecht; Parental role; Elternrolle; Social support; Soziale Unterstützung
Abstract	Background: The right of people with disability to be self-determining, to live a life of their choosing, is increasingly recognized and promoted. For adults with intellectual disability, support to enable self-determination may be required. This is often provided by family, yet little is understood about the experience of providing such support. Methods: An interpretative phenomenological analysis (IPA) of eight individual, semi-structured interviews with mothers was conducted, to understand the meaning given to their experience of supporting self-determination of their adult son or daughter with intellectual disability. Results: Three superordinate themes were identified: (a) support context; (b) continuum of support roles; and (c) mother's personal concerns. Conclusion: Mothers of adults with intellectual disability experience an ongoing sense of responsibility to balance competing rights and concerns as they support self-determination. This complex, interdependent relationship results in roles that may facilitate, guide, influence and at times restrict choice and control. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01