End-of-Life Decisions for People with Intellectual Disability -- A Swiss Survey

Autor/inn/en	Wicki, Monika T.; Hättich, Achim
Titel	End-of-Life Decisions for People with Intellectual Disability -- A Swiss Survey
Quelle	In: International Journal of Developmental Disabilities, 63 (2017) 1, S.2-7 (6 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Wicki, Monika T.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	2047-3869
DOI	10.1080/20473869.2015.1107363
Schlagwörter	Decision Making; Intellectual Disability; Residential Care; Adults; Case Studies; Death; Incidence; Medical Services; Correlation; Foreign Countries; Switzerland + Suchen Sie Ihr Suchwort? Decision-making; Entscheidungsfindung; Intellect; Disability; Disabilities; Verstand; Behinderung; Case study; Fallstudie; Case Study; Sterbefall; Tod; Todesfall; Vorkommen; Arzt; Korrelation; Ausland; Schweiz
Abstract	Objectives: The aim of this study was to explore the prevalence and nature of end-of-life decisions for people with disabilities in Swiss residential homes and determine their involvement making these decisions. Methods: All of the residential homes for adults with disabilities in Switzerland (N = 437) were invited to participate in a cross-sectional survey. The survey response quote was 58.2%. Residential home directors provided information on 233 deaths. The chi-square test was used to study differences in the prevalence and nature of end-of-life decisions between people with intellectual disability (ID) and people with other disabilities. The Mann-Whitney test was used to analyze differences in their involvement in end-of-life decisions. Binary logistic regression analyses were used to analyze factors determining the prevalence of withholding life-prolonging treatment from these residents. Results: A high prevalence of end-of-life decisions was found (70.4%). For people with ID, the decision to abandon life-prolonging treatment was more often taken (46.2%, 72 of 156 residents) than for people with other disabilities (24.7%, 19 of 77 residents) (?[superscript 2](1, N = 233) = 9.992, P = 0.01). The following variables were positively associated with the decision to withhold life-prolonging treatment: presence of advanced directives (odds ratio [OR] 2.998; 95% CI 1.629, 5.518), degree of disability (OR 1.677; 95% CI 1.247, 2.256) and ID (OR 2.265; 95% CI 1.064, 4.823). Conclusion: This study provides the first insight into end-of-life decision making for people with ID in Switzerland. The results have implications on surrogate decision making for people with ID living in residential homes. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01