Family Quality of Life When Raising a Child with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection (PANDAS)

Autor/inn/en	Demchick, Barbara B.; Ehler, Julia; Marramar, Shelly; Mills, Alison; Nuneviller, Amanda
Titel	Family Quality of Life When Raising a Child with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection (PANDAS)
Quelle	In: Journal of Occupational Therapy, Schools & Early Intervention, 12 (2019) 2, S.182-199 (18 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1941-1243
DOI	10.1080/19411243.2019.1592052
Schlagwörter	Behavior Disorders; Diseases; Phenomenology; Quality of Life; Emotional Disturbances; Occupational Therapy; Child Behavior; Parent Attitudes; Family Relationship; Mental Disorders; Pediatrics; Symptoms (Individual Disorders); Educational Environment; Child Rearing; Maryland + Suchen Sie Ihr Suchwort? Disease; Krankheit; Phenomenological psychology; Phänomenologie; Psychologie; Lebensqualität; Gefühlsstörung; Beschäftigungstherapie; Elternverhalten; Mental illness; Geisteskrankheit; Klinische Sozialpädiatrie; Psychiatrische Symptomatik; Lernumgebung; Pädagogische Umwelt; Schulumwelt; Kindererziehung
Abstract	PANDAS is characterized by rapid onset of Obsessive Compulsive Disorder and/or tics following streptococcal infection in a previously healthy child. PANDAS is frequently misdiagnosed and misunderstood, which affects family quality of life (FQOL). A qualitative phenomenological design was used to examine FQOL in six families with a child with PANDAS. Data were collected through an audiotaped semi-structured interview and a phone interview to confirm findings. After rigorous data analysis, five themes emerged: Life Suddenly Turned Upside Down, My Child is Not Crazy, Emotional Distress within the Family, Major Life Alteration, and School Drastically Influences FQOL. Findings suggest that occupational performance and FQOL are severely restricted when a child has PANDAS. Implications for occupational therapy are discussed. (As Provided).
Anmerkungen	Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01