Wellbeing of Mothers of Children with "A-U-T-I-S-M" in Malaysia: An Interpretative Phenomenological Analysis Study

Autor/inn/en	Ilias, Kartini; Liaw, Jeanette Hui Jean; Cornish, Kim; Park, Miriam Sang-Ah; Golden, Karen Jennifer
Titel	Wellbeing of Mothers of Children with "A-U-T-I-S-M" in Malaysia: An Interpretative Phenomenological Analysis Study
Quelle	In: Journal of Intellectual & Developmental Disability, 42 (2017) 1, S.74-89 (16 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Cornish, Kim) ORCID (Park, Miriam Sang-Ah) ORCID (Golden, Karen Jennifer)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1469-9532
DOI	10.3109/13668250.2016.1196657
Schlagwörter	Foreign Countries; Web Sites; Pervasive Developmental Disorders; Autism; Mothers; Phenomenology; Semi Structured Interviews; Well Being; Adjustment (to Environment); Spelling; Coping; Resilience (Psychology); Symptoms (Individual Disorders); Psychological Patterns; Social Support Groups; Cultural Influences; Children; Child Rearing; Malaysia + Suchen Sie Ihr Suchwort? Ausland; Web-Design; Autismus; Mother; Mutter; Phenomenological psychology; Phänomenologie; Psychologie; Well-being; Wellness; Wohlbefinden; Schreibweise; Bewältigung; Psychiatrische Symptomatik; Social support; Soziale Unterstützung; Cultural influence; Kultureinfluss; Child; Kind; Kinder; Kindererziehung
Abstract	Background: This qualitative study aimed to explore how mothers gave meaning to their experiences of raising a child with autism spectrum disorder (ASD) in Malaysia. Methods: Using interpretative phenomenological analysis, semistructured interviews were conducted with 8 Malaysian mothers from different ethnic backgrounds (4 Chinese, 3 Malays, and 1 Indian). Results: Three themes for the mothers' adaptation and wellbeing development were identified, including Problem realisation within the context: Learning to spell A-U-T-I-S-M in Malaysia, WE are living with autism, and Resilient overcoming: Climbing Mount Kinabalu. The mothers viewed their child's ASD symptoms and behaviour problems (e.g., hyperactivity and sleep difficulties) as taking a toll on wellbeing. However, coping strategies, including acceptance, proactive mindset, character growth, spirituality, and parent support networks, fostered wellbeing. Conclusion: Both intrapersonal and interpersonal protective processes were important. The findings suggested that Seligman's (2011) PERMA framework may be applicable to understanding parental wellbeing. Clinical, policy, and research suggestions were discussed. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01