Family Planning and Family Vision in Mothers after Diagnosis of a Child with Autism Spectrum Disorder

Autor/inn/en	Navot, Noa; Jorgenson, Alicia Grattan; Vander Stoep, Ann; Toth, Karen; Webb, Sara Jane
Titel	Family Planning and Family Vision in Mothers after Diagnosis of a Child with Autism Spectrum Disorder
Quelle	In: Autism: The International Journal of Research and Practice, 20 (2016) 5, S.605-615 (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361315602134
Schlagwörter	Family Planning; Pervasive Developmental Disorders; Mothers; Decision Making; Young Children; Birth Order; Grounded Theory; Child Rearing; Cognitive Style; Clinical Diagnosis; Preschool Children; Counseling; Adjustment (to Environment); Behavior Rating Scales; Autism; Diagnostic Tests; Observation; Child Caregivers; Semi Structured Interviews; Case Studies; Parents; Goal Orientation; Disabilities; Family Life; Qualitative Research; Autism Diagnostic Observation Schedule; Vineland Adaptive Behavior Scales + Suchen Sie Ihr Suchwort? Familienplanung; Mother; Mutter; Decision-making; Entscheidungsfindung; Frühe Kindheit; Geburtenfolge; Kindererziehung; Cognitive styles; Kognitiver Stil; Pre-school age; Preschool age; Child; Children; Pre-school education; Preschool education; Vorschulalter; Kind; Kinder; Vorschulkind; Vorschulkinder; Vorschulerziehung; Vorschule; Counselling; Beratung; Autismus; Diagnostic test; Diagnostischer Test; Beobachtung; Caregiver; Caregivers; Carer; Kinderbetreuung; Case study; Fallstudie; Case Study; Eltern; Zielorientierung; Zielvorstellung; Handicap; Behinderung; Qualitative Forschung
Abstract	The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first-born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child's diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop child rearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01